|
|
Post by wolf on Dec 28, 2023 19:18:22 GMT
….now I know what Paul Sheldon’s wheelchair excursions were like. 😂
((((((All in need or not)))))) ❤️🙏
|
|
|
|
Post by wolf on Jan 3, 2024 18:57:30 GMT
…
A really rough day right now, but getting through it. See y’all later. 🙂
((((((All in need or not)))))) 🙏❤️
More information on Diagnosis added into the online chart :
“REFERRAL - OUTSIDE FACILITY/PROVIDER CLINIC - Comments
Severe chronic progressive debility, and EMG 2023 with chronic axonal demyelinating polyneuropathy, "severe bilateral chronic sensorimotor axonal + demyelinating peripheral polyneuropathy affecting all four extremities.
There are signs of reinnervation without active denervation present."
EMG: Electromyography Test: used to diagnose injuries and conditions that affect your muscles and the nerves that control them.
Chronic Progressive Debility: decline of physical function.
Chronic Axonal Demyelinating Polyneuropathy (CIDP): (Axonal is an adjective that means of, relating to, affecting, or taking place along an axon, the long, thin, and cylindrical part of a nerve cell) CIDP is caused by damage to the fat-based protective covering on nerves called the myelin sheath. Symptoms of CIDP are:
* Tingling or no feeling in fingers and toes
* Weakness of arms and legs
* Loss of deep tendon (muscle stretch) reflexes
* Fatigue or feeling tired
* Unusual feelings in the body
Severe Bilateral Chronic Sensorimotor Axonal + Demyelinating Peripheral Polyneuropathy: Sensorimotor polyneuropathy is a condition that causes a decreased ability to move and feel (sensation) because of nerve damage.
Reinnervation without Active Denervation: the process of innervating (supplying nerves to) a part of the body that has lost nerve supply, as from injury or disease without Active Denervation (loss of nerve supply).
The restoration of function to a denervated body part and especially a muscle by supplying it with nerves through regrowth or grafting.”
That above is in addition to a lot of info on the Spondylosis.
|
|
|
|
Post by osnafrank on Jan 3, 2024 19:10:36 GMT
(((wolfie))) 
|
|
|
|
Post by spideyman on Jan 3, 2024 19:33:48 GMT
…
A really rough day right now, but getting through it. See y’all later. 🙂
((((((All in need or not)))))) 🙏❤️
More information on Diagnosis added into the online chart :
“REFERRAL - OUTSIDE FACILITY/PROVIDER CLINIC - Comments
Severe chronic progressive debility, and EMG 2023 with chronic axonal demyelinating polyneuropathy, "severe bilateral chronic sensorimotor axonal + demyelinating peripheral polyneuropathy affecting all four extremities.
There are signs of reinnervation without active denervation present."
EMG: Electromyography Test: used to diagnose injuries and conditions that affect your muscles and the nerves that control them.
Chronic Progressive Debility: decline of physical function.
Chronic Axonal Demyelinating Polyneuropathy (CIDP): (Axonal is an adjective that means of, relating to, affecting, or taking place along an axon, the long, thin, and cylindrical part of a nerve cell) CIDP is caused by damage to the fat-based protective covering on nerves called the myelin sheath. Symptoms of CIDP are:
* Tingling or no feeling in fingers and toes
* Weakness of arms and legs
* Loss of deep tendon (muscle stretch) reflexes
* Fatigue or feeling tired
* Unusual feelings in the body
Severe Bilateral Chronic Sensorimotor Axonal + Demyelinating Peripheral Polyneuropathy: Sensorimotor polyneuropathy is a condition that causes a decreased ability to move and feel (sensation) because of nerve damage.
Reinnervation without Active Denervation: the process of innervating (supplying nerves to) a part of the body that has lost nerve supply, as from injury or disease without Active Denervation (loss of nerve supply).
The restoration of function to a denervated body part and especially a muscle by supplying it with nerves through regrowth or grafting.”
That above is in addition to a lot of info on the Spondylosis.
|
|
|
|
Post by wolf on Jan 4, 2024 0:38:50 GMT
(((wolfie))) …
A really rough day right now, but getting through it. See y’all later. 🙂
((((((All in need or not)))))) 🙏❤️
More information on Diagnosis added into the online chart :
“REFERRAL - OUTSIDE FACILITY/PROVIDER CLINIC - Comments
Severe chronic progressive debility, and EMG 2023 with chronic axonal demyelinating polyneuropathy, "severe bilateral chronic sensorimotor axonal + demyelinating peripheral polyneuropathy affecting all four extremities.
There are signs of reinnervation without active denervation present."
EMG: Electromyography Test: used to diagnose injuries and conditions that affect your muscles and the nerves that control them.
Chronic Progressive Debility: decline of physical function.
Chronic Axonal Demyelinating Polyneuropathy (CIDP): (Axonal is an adjective that means of, relating to, affecting, or taking place along an axon, the long, thin, and cylindrical part of a nerve cell) CIDP is caused by damage to the fat-based protective covering on nerves called the myelin sheath. Symptoms of CIDP are:
* Tingling or no feeling in fingers and toes
* Weakness of arms and legs
* Loss of deep tendon (muscle stretch) reflexes
* Fatigue or feeling tired
* Unusual feelings in the body
Severe Bilateral Chronic Sensorimotor Axonal + Demyelinating Peripheral Polyneuropathy: Sensorimotor polyneuropathy is a condition that causes a decreased ability to move and feel (sensation) because of nerve damage.
Reinnervation without Active Denervation: the process of innervating (supplying nerves to) a part of the body that has lost nerve supply, as from injury or disease without Active Denervation (loss of nerve supply).
The restoration of function to a denervated body part and especially a muscle by supplying it with nerves through regrowth or grafting.”
That above is in addition to a lot of info on the Spondylosis.
Doing a bit better tonight
(((((Frank and Lady))))) 🙂❤️🙏 |
|
|
|
Post by Dizzy on Jan 4, 2024 0:50:16 GMT
wolf Prayers Bein Sent To You Sis.
|
|
|
|
Post by darkharbinger on Jan 4, 2024 0:51:49 GMT
prayers my friend
|
|
|
|
Post by Tanith on Jan 4, 2024 12:20:52 GMT
Oh, wolf... 
Hugs, prayers, good vibes...you got 'em all. Hopefully they're giving you some viable treatment options. We are all here to cheer you on!
|
|
|
|
Post by wolf on Jan 6, 2024 0:26:04 GMT
Thank you, guys. (((((Ka-tet))))) ❤️🙏
|
|
|
|
Post by wolf on Jan 10, 2024 19:30:57 GMT
Today I have to thank God and thank all of you my friends.
All your prayers and good wishing for me help so much.
Just when this condition(s?) get worse and many things become harder to do, I manage to keep on and accomplish the impossible, and do what I need to do daily. Especially on the really rough days.
I am grateful. Love you guys.
((((((ka-tet ))))))🙂🙏❤️
|
|
|
|
Post by kingfamilyfan on Jan 12, 2024 23:55:55 GMT
Wolf keeping you in my thoughts and prayers.Hoping each
day you feel better. Much Love my Friend.
|
|
|
|
Post by wolf on Jan 13, 2024 17:10:16 GMT
Wolf keeping you in my thoughts and prayers.Hoping each
day you feel better. Much Love my Friend.
|
|
|
|
Post by wolf on Jan 14, 2024 3:24:13 GMT
Been a really good day, and feeling good all day today.
I am happy and grateful.
Everyone have a safe, wonderful and peaceful night. 😊🙏❤️
((((((All in need or not))))))
|
|
|
|
Post by osnafrank on Jan 14, 2024 8:48:25 GMT
Been a really good day, and feeling good all day today.
I am happy and grateful.
Everyone have a safe, wonderful and peaceful night. 😊🙏❤️
((((((All in need or not)))))) |
|
|
|
Post by Dizzy on Jan 17, 2024 2:28:18 GMT
Been a really good day, and feeling good all day today.
I am happy and grateful.
Everyone have a safe, wonderful and peaceful night. 😊🙏❤️
((((((All in need or not)))))) I So Happy To Hear That Sis. You Always In My Prayers An I Hope Your Good Feelings Continue Too Happen |
|
|
|
Post by wolf on Feb 6, 2024 20:21:42 GMT
Update …..
Since my last appointment in November symptoms have changed and escalated again.
Now it’s clear that when I’m sitting straight up, my arms and hands get decidedly worse.
I can only guess, but it feels to me like my spine must be compressing and putting pressure on something, to cause this.
I’ll be seeing the guys in Neurology again (hopefully soon) and will have a lot to let them know about.
If I sit back, or lay back, on the sofa or my bed, they improve and work better.
That’s what I’m doing right now to be able to type more and longer, with a little less difficulty.
When I get to Neurology I'm going put them on the spot and make them answer questions.
They haven’t said it yet, but I’m thinking there isn’t going to be anything they can really do as far as treatment. Forget the reinnervation, there’s no signs of any of that going on. But it sure seems like the denervation is moving along steadily.
I just want them to level with me, and get on with telling me what I can probably expect to happen.
The way everything feels right now, sooner or later my good arm is probably going to be as useful as Christy Brown’s left foot.
I did some cross referencing, and read up some more, on the conditions I have, neuropathy in particular.
Low blood pressure is a symptom of that.
No one at County has mentioned that before. So I’ll ask them about that too.
I googled "what triggers episodes of low blood pressure".
'Emotional stress' was one thing listed that explained a few things.
So I’m avoiding getting into altercations with f******g idiots and A**hole* 😂
and keeping on pacing myself and avoiding over exertion.
I’ll tell the doc’s what I’ve looked up, and ask them. I know I could have gotten some things wrong, or misread.
And I know I’m not a doc, and I’m not going to try to diagnose this stuff going on. Just can’t help wondering sometimes, and look around at the possibilities. 😊
I’m figuring out new ways to do things and get things done. Adapting and adjusting to compensate for the challenging physical state I’m now in.
Lol, who’d have thunk it.
I’ve found 121 new uses for a broom.
The Ex has been really good, he helps me out when he’s home from work. He does whatever I ask him to, without bitching or complaining. 😊
And I do try to not be bothering him unless I really need to, and need help with something’s.
Now that I think about it, he hasn’t been bitching or ranting about ANYTHING lately. 🤔
….that ain’t right …..something is going on. 🤨
I’ll get to the bottom of that. 😒
I’ve got a raging damn sinus infection going on too, I’ll get that seen to as well. It’s really starting to be a drag.
I told them about it before, but it kinda got put on the back burner because of all the other stuff they were looking into.
That’s all I can think of right now, to update y’all. I’m doing alright. Coping with stuff, and I am grateful for everything, and for getting through every day okay, especially the rough ones. Thank God. And thank all of you for your good prayers snd wishes/thoughts/vibes. Love all you guys. 😊
((((((All in need or not)))))) ❤️🙏
|
|
|
|
Post by osnafrank on Feb 6, 2024 20:49:32 GMT
Update …..
Since my last appointment in November symptoms have changed and escalated again.
Now it’s clear that when I’m sitting straight up, my arms and hands get decidedly worse.
I can only guess, but it feels to me like my spine must be compressing and putting pressure on something, to cause this.
I’ll be seeing the guys in Neurology again (hopefully soon) and will have a lot to let them know about.
If I sit back, or lay back, on the sofa or my bed, they improve and work better.
That’s what I’m doing right now to be able to type more and longer, with a little less difficulty.
When I get to Neurology I'm going put them on the spot and make them answer questions.
They haven’t said it yet, but I’m thinking there isn’t going to be anything they can really do as far as treatment. Forget the reinnervation, there’s no signs of any of that going on. But it sure seems like the denervation is moving along steadily.
I just want them to level with me, and get on with telling me what I can probably expect to happen.
The way everything feels right now, sooner or later my good arm is probably going to be as useful as Christy Brown’s left foot.
I did some cross referencing, and read up some more, on the conditions I have, neuropathy in particular.
Low blood pressure is a symptom of that.
No one at County has mentioned that before. So I’ll ask them about that too.
I googled "what triggers episodes of low blood pressure".
'Emotional stress' was one thing listed that explained a few things.
So I’m avoiding getting into altercations with f******g idiots and A**hole* 😂
and keeping on pacing myself and avoiding over exertion.
I’ll tell the doc’s what I’ve looked up, and ask them. I know I could have gotten some things wrong, or misread.
And I know I’m not a doc, and I’m not going to try to diagnose this stuff going on. Just can’t help wondering sometimes, and look around at the possibilities. 😊
I’m figuring out new ways to do things and get things done. Adapting and adjusting to compensate for the challenging physical state I’m now in.
Lol, who’d have thunk it.
I’ve found 121 new uses for a broom.
The Ex has been really good, he helps me out when he’s home from work. He does whatever I ask him to, without bitching or complaining. 😊
And I do try to not be bothering him unless I really need to, and need help with something’s.
Now that I think about it, he hasn’t been bitching or ranting about ANYTHING lately. 🤔
….that ain’t right …..something is going on. 🤨
I’ll get to the bottom of that. 😒
I’ve got a raging damn sinus infection going on too, I’ll get that seen to as well. It’s really starting to be a drag.
I told them about it before, but it kinda got put on the back burner because of all the other stuff they were looking into.
That’s all I can think of right now, to update y’all. I’m doing alright. Coping with stuff, and I am grateful for everything, and for getting through every day okay, especially the rough ones. Thank God. And thank all of you for your good prayers snd wishes/thoughts/vibes. Love all you guys. 😊
((((((All in need or not)))))) ❤️🙏
Sorry to hear all the shiet, you're going through.
Continued positive thoughts, calming and healing vibes (((wolfie))) |
|
|
|
Post by wolf on Feb 6, 2024 21:28:48 GMT
Update …..
Since my last appointment in November symptoms have changed and escalated again.
Now it’s clear that when I’m sitting straight up, my arms and hands get decidedly worse.
I can only guess, but it feels to me like my spine must be compressing and putting pressure on something, to cause this.
I’ll be seeing the guys in Neurology again (hopefully soon) and will have a lot to let them know about.
If I sit back, or lay back, on the sofa or my bed, they improve and work better.
That’s what I’m doing right now to be able to type more and longer, with a little less difficulty.
When I get to Neurology I'm going put them on the spot and make them answer questions.
They haven’t said it yet, but I’m thinking there isn’t going to be anything they can really do as far as treatment. Forget the reinnervation, there’s no signs of any of that going on. But it sure seems like the denervation is moving along steadily.
I just want them to level with me, and get on with telling me what I can probably expect to happen.
The way everything feels right now, sooner or later my good arm is probably going to be as useful as Christy Brown’s left foot.
I did some cross referencing, and read up some more, on the conditions I have, neuropathy in particular.
Low blood pressure is a symptom of that.
No one at County has mentioned that before. So I’ll ask them about that too.
I googled "what triggers episodes of low blood pressure".
'Emotional stress' was one thing listed that explained a few things.
So I’m avoiding getting into altercations with f******g idiots and A**hole* 😂
and keeping on pacing myself and avoiding over exertion.
I’ll tell the doc’s what I’ve looked up, and ask them. I know I could have gotten some things wrong, or misread.
And I know I’m not a doc, and I’m not going to try to diagnose this stuff going on. Just can’t help wondering sometimes, and look around at the possibilities. 😊
I’m figuring out new ways to do things and get things done. Adapting and adjusting to compensate for the challenging physical state I’m now in.
Lol, who’d have thunk it.
I’ve found 121 new uses for a broom.
The Ex has been really good, he helps me out when he’s home from work. He does whatever I ask him to, without bitching or complaining. 😊
And I do try to not be bothering him unless I really need to, and need help with something’s.
Now that I think about it, he hasn’t been bitching or ranting about ANYTHING lately. 🤔
….that ain’t right …..something is going on. 🤨
I’ll get to the bottom of that. 😒
I’ve got a raging damn sinus infection going on too, I’ll get that seen to as well. It’s really starting to be a drag.
I told them about it before, but it kinda got put on the back burner because of all the other stuff they were looking into.
That’s all I can think of right now, to update y’all. I’m doing alright. Coping with stuff, and I am grateful for everything, and for getting through every day okay, especially the rough ones. Thank God. And thank all of you for your good prayers snd wishes/thoughts/vibes. Love all you guys. 😊
((((((All in need or not)))))) ❤️🙏
Sorry to hear all the shiet, you're going through.
Continued positive thoughts, calming and healing vibes (((wolfie)))  ohhhh….I don’t want one of those runnin’ around my house.  
Thanks (((((Frank))))) 😊
It’ll be alright.
Just letting y’all know what’s going on, and why I’m not always around as much as I’d like to be. 🙂💔 |
|
|
|
Post by kingfamilyfan on Feb 7, 2024 2:27:35 GMT
Continued prayers wolf. Keeping you in my heart.
|
|
|
|
Post by wolf on Feb 7, 2024 17:48:36 GMT
I So Happy To Hear That Sis. You Always In My Prayers An I Hope Your Good Feelings Continue Too Happen Continued prayers wolf. Keeping you in my heart.
Always keeping you and yours in heart and prayers too. 😊❤️🙏
I hope you and everyone are all doing okay, KFF.  ❤️ |
|
❤️