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Post by Dizzy on Feb 7, 2024 22:04:14 GMT
Prayers Bein Sent To wolf Sister. ILY An Hope You Feel Better Soon. |
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Post by wolf on Feb 8, 2024 1:35:02 GMT
Prayers Bein Sent To wolf Sister. ILY An Hope You Feel Better Soon. |
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Post by spideyman on Feb 8, 2024 1:59:14 GMT
Update …..
Since my last appointment in November symptoms have changed and escalated again.
Now it’s clear that when I’m sitting straight up, my arms and hands get decidedly worse.
I can only guess, but it feels to me like my spine must be compressing and putting pressure on something, to cause this.
I’ll be seeing the guys in Neurology again (hopefully soon) and will have a lot to let them know about.
If I sit back, or lay back, on the sofa or my bed, they improve and work better.
That’s what I’m doing right now to be able to type more and longer, with a little less difficulty.
When I get to Neurology I'm going put them on the spot and make them answer questions.
They haven’t said it yet, but I’m thinking there isn’t going to be anything they can really do as far as treatment. Forget the reinnervation, there’s no signs of any of that going on. But it sure seems like the denervation is moving along steadily.
I just want them to level with me, and get on with telling me what I can probably expect to happen.
The way everything feels right now, sooner or later my good arm is probably going to be as useful as Christy Brown’s left foot.
I did some cross referencing, and read up some more, on the conditions I have, neuropathy in particular.
Low blood pressure is a symptom of that.
No one at County has mentioned that before. So I’ll ask them about that too.
I googled "what triggers episodes of low blood pressure".
'Emotional stress' was one thing listed that explained a few things.
So I’m avoiding getting into altercations with f******g idiots and A**hole* 😂
and keeping on pacing myself and avoiding over exertion.
I’ll tell the doc’s what I’ve looked up, and ask them. I know I could have gotten some things wrong, or misread.
And I know I’m not a doc, and I’m not going to try to diagnose this stuff going on. Just can’t help wondering sometimes, and look around at the possibilities. 😊
I’m figuring out new ways to do things and get things done. Adapting and adjusting to compensate for the challenging physical state I’m now in.
Lol, who’d have thunk it.
I’ve found 121 new uses for a broom.
The Ex has been really good, he helps me out when he’s home from work. He does whatever I ask him to, without bitching or complaining. 😊
And I do try to not be bothering him unless I really need to, and need help with something’s.
Now that I think about it, he hasn’t been bitching or ranting about ANYTHING lately. 🤔
….that ain’t right …..something is going on. 🤨
I’ll get to the bottom of that. 😒
I’ve got a raging damn sinus infection going on too, I’ll get that seen to as well. It’s really starting to be a drag.
I told them about it before, but it kinda got put on the back burner because of all the other stuff they were looking into.
That’s all I can think of right now, to update y’all. I’m doing alright. Coping with stuff, and I am grateful for everything, and for getting through every day okay, especially the rough ones. Thank God. And thank all of you for your good prayers snd wishes/thoughts/vibes. Love all you guys. 😊
((((((All in need or not)))))) ❤️🙏
Prayers continue. Keep notes, especially what you do before symptoms occur. Eat natural food when possible. Good vibes. |
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Post by wolf on Feb 8, 2024 3:41:42 GMT
Update …..
Since my last appointment in November symptoms have changed and escalated again.
Now it’s clear that when I’m sitting straight up, my arms and hands get decidedly worse.
I can only guess, but it feels to me like my spine must be compressing and putting pressure on something, to cause this.
I’ll be seeing the guys in Neurology again (hopefully soon) and will have a lot to let them know about.
If I sit back, or lay back, on the sofa or my bed, they improve and work better.
That’s what I’m doing right now to be able to type more and longer, with a little less difficulty.
When I get to Neurology I'm going put them on the spot and make them answer questions.
They haven’t said it yet, but I’m thinking there isn’t going to be anything they can really do as far as treatment. Forget the reinnervation, there’s no signs of any of that going on. But it sure seems like the denervation is moving along steadily.
I just want them to level with me, and get on with telling me what I can probably expect to happen.
The way everything feels right now, sooner or later my good arm is probably going to be as useful as Christy Brown’s left foot.
I did some cross referencing, and read up some more, on the conditions I have, neuropathy in particular.
Low blood pressure is a symptom of that.
No one at County has mentioned that before. So I’ll ask them about that too.
I googled "what triggers episodes of low blood pressure".
'Emotional stress' was one thing listed that explained a few things.
So I’m avoiding getting into altercations with f******g idiots and A**hole* 😂
and keeping on pacing myself and avoiding over exertion.
I’ll tell the doc’s what I’ve looked up, and ask them. I know I could have gotten some things wrong, or misread.
And I know I’m not a doc, and I’m not going to try to diagnose this stuff going on. Just can’t help wondering sometimes, and look around at the possibilities. 😊
I’m figuring out new ways to do things and get things done. Adapting and adjusting to compensate for the challenging physical state I’m now in.
Lol, who’d have thunk it.
I’ve found 121 new uses for a broom.
The Ex has been really good, he helps me out when he’s home from work. He does whatever I ask him to, without bitching or complaining. 😊
And I do try to not be bothering him unless I really need to, and need help with something’s.
Now that I think about it, he hasn’t been bitching or ranting about ANYTHING lately. 🤔
….that ain’t right …..something is going on. 🤨
I’ll get to the bottom of that. 😒
I’ve got a raging damn sinus infection going on too, I’ll get that seen to as well. It’s really starting to be a drag.
I told them about it before, but it kinda got put on the back burner because of all the other stuff they were looking into.
That’s all I can think of right now, to update y’all. I’m doing alright. Coping with stuff, and I am grateful for everything, and for getting through every day okay, especially the rough ones. Thank God. And thank all of you for your good prayers snd wishes/thoughts/vibes. Love all you guys. 😊
((((((All in need or not)))))) ❤️🙏
Prayers continue. Keep notes, especially what you do before symptoms occur. Eat natural food when possible. Good vibes. |
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Post by wireman on Feb 8, 2024 13:09:15 GMT
Update …..
Since my last appointment in November symptoms have changed and escalated again.
Now it’s clear that when I’m sitting straight up, my arms and hands get decidedly worse.
I can only guess, but it feels to me like my spine must be compressing and putting pressure on something, to cause this.
I’ll be seeing the guys in Neurology again (hopefully soon) and will have a lot to let them know about.
If I sit back, or lay back, on the sofa or my bed, they improve and work better.
That’s what I’m doing right now to be able to type more and longer, with a little less difficulty.
When I get to Neurology I'm going put them on the spot and make them answer questions.
They haven’t said it yet, but I’m thinking there isn’t going to be anything they can really do as far as treatment. Forget the reinnervation, there’s no signs of any of that going on. But it sure seems like the denervation is moving along steadily.
I just want them to level with me, and get on with telling me what I can probably expect to happen.
The way everything feels right now, sooner or later my good arm is probably going to be as useful as Christy Brown’s left foot.
I did some cross referencing, and read up some more, on the conditions I have, neuropathy in particular.
Low blood pressure is a symptom of that.
No one at County has mentioned that before. So I’ll ask them about that too.
I googled "what triggers episodes of low blood pressure".
'Emotional stress' was one thing listed that explained a few things.
So I’m avoiding getting into altercations with f******g idiots and A**hole* 😂
and keeping on pacing myself and avoiding over exertion.
I’ll tell the doc’s what I’ve looked up, and ask them. I know I could have gotten some things wrong, or misread.
And I know I’m not a doc, and I’m not going to try to diagnose this stuff going on. Just can’t help wondering sometimes, and look around at the possibilities. 😊
I’m figuring out new ways to do things and get things done. Adapting and adjusting to compensate for the challenging physical state I’m now in.
Lol, who’d have thunk it.
I’ve found 121 new uses for a broom.
The Ex has been really good, he helps me out when he’s home from work. He does whatever I ask him to, without bitching or complaining. 😊
And I do try to not be bothering him unless I really need to, and need help with something’s.
Now that I think about it, he hasn’t been bitching or ranting about ANYTHING lately. 🤔
….that ain’t right …..something is going on. 🤨
I’ll get to the bottom of that. 😒
I’ve got a raging damn sinus infection going on too, I’ll get that seen to as well. It’s really starting to be a drag.
I told them about it before, but it kinda got put on the back burner because of all the other stuff they were looking into.
That’s all I can think of right now, to update y’all. I’m doing alright. Coping with stuff, and I am grateful for everything, and for getting through every day okay, especially the rough ones. Thank God. And thank all of you for your good prayers snd wishes/thoughts/vibes. Love all you guys. 😊
((((((All in need or not)))))) ❤️🙏
Sorry to hear this. I hope you can get some relief from this.
(((Wolf)))
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Post by wolf on Feb 8, 2024 20:01:11 GMT
Update …..
Since my last appointment in November symptoms have changed and escalated again.
Now it’s clear that when I’m sitting straight up, my arms and hands get decidedly worse.
I can only guess, but it feels to me like my spine must be compressing and putting pressure on something, to cause this.
I’ll be seeing the guys in Neurology again (hopefully soon) and will have a lot to let them know about.
If I sit back, or lay back, on the sofa or my bed, they improve and work better.
That’s what I’m doing right now to be able to type more and longer, with a little less difficulty.
When I get to Neurology I'm going put them on the spot and make them answer questions.
They haven’t said it yet, but I’m thinking there isn’t going to be anything they can really do as far as treatment. Forget the reinnervation, there’s no signs of any of that going on. But it sure seems like the denervation is moving along steadily.
I just want them to level with me, and get on with telling me what I can probably expect to happen.
The way everything feels right now, sooner or later my good arm is probably going to be as useful as Christy Brown’s left foot.
I did some cross referencing, and read up some more, on the conditions I have, neuropathy in particular.
Low blood pressure is a symptom of that.
No one at County has mentioned that before. So I’ll ask them about that too.
I googled "what triggers episodes of low blood pressure".
'Emotional stress' was one thing listed that explained a few things.
So I’m avoiding getting into altercations with f******g idiots and A**hole* 😂
and keeping on pacing myself and avoiding over exertion.
I’ll tell the doc’s what I’ve looked up, and ask them. I know I could have gotten some things wrong, or misread.
And I know I’m not a doc, and I’m not going to try to diagnose this stuff going on. Just can’t help wondering sometimes, and look around at the possibilities. 😊
I’m figuring out new ways to do things and get things done. Adapting and adjusting to compensate for the challenging physical state I’m now in.
Lol, who’d have thunk it.
I’ve found 121 new uses for a broom.
The Ex has been really good, he helps me out when he’s home from work. He does whatever I ask him to, without bitching or complaining. 😊
And I do try to not be bothering him unless I really need to, and need help with something’s.
Now that I think about it, he hasn’t been bitching or ranting about ANYTHING lately. 🤔
….that ain’t right …..something is going on. 🤨
I’ll get to the bottom of that. 😒
I’ve got a raging damn sinus infection going on too, I’ll get that seen to as well. It’s really starting to be a drag.
I told them about it before, but it kinda got put on the back burner because of all the other stuff they were looking into.
That’s all I can think of right now, to update y’all. I’m doing alright. Coping with stuff, and I am grateful for everything, and for getting through every day okay, especially the rough ones. Thank God. And thank all of you for your good prayers snd wishes/thoughts/vibes. Love all you guys. 😊
((((((All in need or not)))))) ❤️🙏
Sorry to hear this. I hope you can get some relief from this.
(((Wolf)))
 😊❤ |
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Post by Tanith on Feb 15, 2024 16:18:31 GMT
Thinking of you, wolf. Have they even tried to suggest things like exercises, therapy, or even chiropractic care to alleviate any of this? I'm not sure if any of it's feasible (or useful), but I thought I'd bring it up.
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Post by wolf on Feb 16, 2024 19:21:02 GMT
Thinking of you, wolf. Have they even tried to suggest things like exercises, therapy, or even chiropractic care to alleviate any of this? I'm not sure if any of it's feasible (or useful), but I thought I'd bring it up.
The only thing they’ve been able to suggest is physical therapy to try help keep my back muscles stay strong.
My lower spine is trashed.
The one thing that sticks in my mind is that I’m not in pain.
That’s a good thing in one way, but maybe the reason WHY isn’t that great.
They all expect, and have assumed, that I have a lot of pain with this.
They try to hide it sometimes, but I see the ‘what the hell’ looks on their faces, when I tell them AGAIN, I’m not hurting.
Like I said before, I get tired, achy and sore, but I don’t have the constant severe pain like I used to.
Grateful for that too. Those years were hell.
When I go back to Neurology, I’ll pin them down on what I can expect to happen. Asking for the best educated guesses they can give me. |
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Post by wolf on Feb 17, 2024 0:26:46 GMT
Well, just got notification today, that a Mar. 11th appointment has been cancelled by County, because of issues with changes in insurance coverage made this new year.
And I still haven’t heard anything from the case worker/social worker with County.
So I’m not messing around with either of them anymore, County or BCBS. I’ll get together what I need to get set up with Medicaid, and get to work on that the best I can.
Once that’s done, it should make getting set up with SSI disability benefits easier. It’ll all work out eventually.
((((((All in need or not)))))) 🙏❤️
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Post by osnafrank on Feb 17, 2024 9:05:09 GMT
Thinking of you, wolf. Have they even tried to suggest things like exercises, therapy, or even chiropractic care to alleviate any of this? I'm not sure if any of it's feasible (or useful), but I thought I'd bring it up.
The only thing they’ve been able to suggest is physical therapy to try help keep my back muscles stay strong.
My lower spine is trashed.
The one thing that sticks in my mind is that I’m not in pain.
That’s a good thing in one way, but maybe the reason WHY isn’t that great.
They all expect, and have assumed, that I have a lot of pain with this.
They try to hide it sometimes, but I see the ‘what the hell’ looks on their faces, when I tell them AGAIN, I’m not hurting.
Like I said before, I get tired, achy and sore, but I don’t have the constant severe pain like I used to.
Grateful for that too. Those years were hell.
When I go back to Neurology, I’ll pin them down on what I can expect to happen. Asking for the best educated guesses they can give me. Well, just got notification today, that a Mar. 11th appointment has been cancelled by County, because of issues with changes in insurance coverage made this new year.
And I still haven’t heard anything from the case worker/social worker with County.
So I’m not messing around with either of them anymore, County or BCBS. I’ll get together what I need to get set up with Medicaid, and get to work on that the best I can.
Once that’s done, it should make getting set up with SSI disability benefits easier. It’ll all work out eventually.
((((((All in need or not)))))) 🙏❤️  |
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Post by kingfamilyfan on Mar 11, 2024 22:59:34 GMT
I will be taking some time off. Have to have open heart surgery. Be back when I can.
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Post by wolf on Mar 11, 2024 23:07:58 GMT
I will be taking some time off. Have to have open heart surgery. Be back when I can. |
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Post by darkharbinger on Mar 12, 2024 0:03:30 GMT
I hope you feel better soon Wolf
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Post by Dizzy on Mar 12, 2024 2:28:12 GMT
I will be taking some time off. Have to have open heart surgery. Be back when I can. Good Luck. I Pray Everyting Go Well For You. Much Love |
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Post by Dizzy on Mar 12, 2024 2:29:13 GMT
I hope you feel better soon Wolf Yup Same Here wolf We All Hope You Feel Better Soon Sis. |
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Post by osnafrank on Mar 12, 2024 9:10:01 GMT
I will be taking some time off. Have to have open heart surgery. Be back when I can.
I'm keeping you in my thoughts
and sending all the best wishes for a successful surgery.
(((kingfamilyfan))) |
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Post by wireman on Mar 12, 2024 13:47:39 GMT
I will be taking some time off. Have to have open heart surgery. Be back when I can. ((((kingfamilyfan))))
healing vibes sent
Make a quick recovery and we'll see you soon.
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Post by spideyman on Mar 12, 2024 15:44:37 GMT
I will be taking some time off. Have to have open heart surgery. Be back when I can.
I'm keeping you in my thoughts
and sending all the best wishes for a successful surgery.
(((kingfamilyfan))) |
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Post by kingfamilyfan on Mar 12, 2024 22:05:37 GMT
Lol guys last night I done the dumbest thing. I have a cream to put on a q tip and swamb my nostels with it.
Anyway I found my self putting it in my ear. Lucky it didn,t hurt anything. Thanks for the well wishes everyone.
Wolf keeping you in my prayers.
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Post by neesy on Mar 14, 2024 15:06:57 GMT
Lol guys last night I done the dumbest thing. I have a cream to put on a q tip and swamb my nostels with it.
Anyway I found my self putting it in my ear. Lucky it didn,t hurt anything. Thanks for the well wishes everyone.
Wolf keeping you in my prayers.
Hey - you take care of yourself - about that cream - I suppose it's not as bad as mixing up the tube with hemorrhoid cream with the tube of toothpaste? lol
Sending you some healing vibes for your upcoming surgery |
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😊❤
